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Cake day: June 13th, 2023

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  • Intriguing question, I was curious if there were actually options, so asked Perplexity (ai search that provides sources, see link at bottom). Unfortunately, nothing terribly definitive other than Italy, possibly.

    While truly anonymous genetic testing is challenging, there are some options outside the US that aim to provide more privacy-focused services:

    • In Canada, the Genetic Non-Discrimination Act prohibits anyone from collecting, using, or disclosing genetic test results without written consent. This gives Canadians more control over their genetic information
    • Some European companies offer more privacy-oriented testing options. For example, DANTE Labs in Italy emphasizes data protection and allows customers to delete their data at any time
    • In the UK, Genomics England runs the 100,000 Genomes Project with strict privacy controls. While not a consumer service, it demonstrates stronger privacy practices.
    • Australian company myDNA focuses on pharmacogenomics testing with an emphasis on data privacy and security.
    • Swiss company Gene By Gene offers DNA testing with data storage in Switzerland, known for strong privacy laws. However, it’s important to note that no genetic test can be truly anonymous, as DNA is inherently identifiable. To maximize privacy:
    • Use a pseudonym and temporary email when ordering
    • Pay with a prepaid card
    • Avoid linking results to other accounts or sharing on social media
    • Carefully read privacy policies and opt out of research/data sharing where possible

    Ultimately, genetic privacy requires careful consideration of the risks and benefits, regardless of the testing company’s location.

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